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#data#healthcare#race#law#health#government#privacy#should#tracking#hipaa
Discussion (114 Comments)Read Original on HackerNews
That it feels like there's an implicit assumption that they would (target or market) seems to be part of the problem.
The civil discussion should now be about the punishment for that.
Regulation is required for handling people's data
If someone targets black people, you're on that list; if someone targets white people, you're also on that list!
update: Yeah, my bad. The point of this comment was to express my increasing cynicism at how we just keep seeing this kind of corporate behavior over and over again and how even when a tiny win is achieved on things like data collection, right to repair, ease for cancelling subscriptions, privacy, and so on and so on, they are so quickly over taken by new tactics or clawbacks/loopholes/non-enforcement of those laws. HN comments was probably the wrong place to vent and its too late to delete it.
We need to overturn CU if we want to be able to go back to a world where government serves people rather than multinational conglomerates.
I think you mean "manipulating content algorithms to favor their viewpoints and to target individuals for maximum effect."
Crypto rug-pulls are now done by a sitting president and if you complain you simply have a "victim mentality" because you're not looking for a way to exploit your neighbor.
We should really be embarrassed of our selves yet people come on here every day to defend the scammers.
Thank you for a googleable term.
Are there any guides on how to decide which "race" you are? Because I cannot imagine that everyone knows exactly which part of the earth all of their ancestors originate from.
This is fundamentally different by intent than in Europe (using french here) where we refer to 'la race humaine' which is the _species_.
The nuance is critical during debates. While I was discussing racial differences to some Swiss folks, they thought I was talking Nazi propaganda! We are all part of the human species, the human species has many races. We are all equal!
Are those slashes AND or OR?
For example, my labs include at least two that have different specified thresholds for "African-American" or "non-AA" patients.
https://en.wikipedia.org/wiki/Sickle_cell_disease#United_Sta...
Okay. That's not much of a signal, is it? This is "metadata" level of detail.
...why?
> State officials say they embed this technology on the exchanges to measure marketing campaigns and to advertise to people who visit their sites
What an absurdist reality we live in
> Tara Lee, a spokesperson for the Washington state exchange, said the tracker on the site was used for advertising campaigns, adding that email, phone and country identifiers were shared with TikTok.
https://www.bloomberg.com/features/2026-healthcare-advertisi...
Personally, I feel local government should not be engaging these services in this way. I don't feel that it's a wise use and that our government employees should be more protective of the public who use their services.
The same reason that I put Google Analytics on my blog in 2014. They want to know how many people are using their site and how.
And like me, they didn't think about the fact that these analytics services are run by advertising companies that may use the data for other purposes. Unlike me, they have privacy laws to follow because they work with health data.
Yeah, why?
Why those questions, but no Danish vs non Danish, and so on?
Why?
Also, I believe (but am not certain) that if there was any criminal case, it would be leadership (C*O) not individual software engineers who would be charged. This is speculation on my part, if anybody has clear facts I'm happy to hear them.
https://www.hhs.gov/hipaa/for-professionals/privacy/laws-reg...
You have to explicitly grant permission for your data to be sold. What's very likely is that either the healthcare provider or insurance company included a request for authorization to sell that data, and the authorization was signed without paying much attention to it.
Honestly, we're better off with it than without it, speaking as someone with exposure to that industry's internals. That act drives a lot of good security practice within the organizations (mostly liability shifting, but still good). Specifically, the fear it instills of ruinous penalties from regulators drives good practice adoption, IME.
Further, multiple crappy patient portals across providers is a crummy experience, but it's an improvement over the world where providers held the data hostage and had zero interest in accommodating your requests for it, or even the idea that you owned it.
(I work in healthcare-adjacent and have met with many lawyers and had to explain them all about "HIPAA compliance"; my comment was not made from ignorance, but practical experience based on learning about how the law is used. There is a privacy rule in it, but that was not the real intent of the law. The intent was to make it easy to keep your health care when you moved between jobs.)
That's it, that's the comment.