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72% Positive
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#data#samsung#health#don#hipaa#gdpr#consent#companies#should#training

Discussion (80 Comments)Read Original on HackerNews
So you buy a device but you can't effectively use half of its features because you'd also have to agree to send them your medical records? Ok then if I refuse, will they refund 50% of the device price since now it's not usable any more?
https://www.europe-consommateurs.eu/en/who-we-are/about-us/e...
And file a complaint... As that breaches a dozen or more EU laws. If a lot of people do it in all the countries, it becomes a national issue.
That is the only way you fix things, and yes, we have had multiple successes with companies taking the piss. Even Samsung can not escape as their have officies in the EU and sell products there.
For the folks outside the EU, ... Its a harder fight and you need to look up your local agencies.
This is they same company whose tvs take pictures of what you are watching and send them back to Samsung.
It's definitely not just Samsung. As bad as this is. The problem is bigger than just them.
Thanks to this article I also noticed the UI was redesigned. At least I could keep my layout but it didn't work like it should, it added some useless cards. It also asked about new "optional" data sharing which I of course declined. There is now a notice that my data wasn't backupped to my Samsung account the last 3 days (???) and the data synchronization doesn't work, the buttons do nothing, it just says "disabled" even though everything is enabled... typical Samsung shitware. Haven't noticed anything with AI training (there is no option) but I'm also in the EU.
- Samsung deletes your sensitive health data
- Samsung does not use this data to train some AI
:-)
They could provide some Google-style takeout to get your data before deletion, but that may not have any meaning or practical use without their devices and software.
For Google Workspace accounts that use the Ultra plan you can disable training while retaining history. I didn't bother signing up again. It is user-hostile.
They are not preventing people from accessing the data, only indefinite storage as i understand. They may claim that storage is needed for the processing (which might make sense, they want to train on the whole time series).
I don't think they have any chance of surviving regulator looking at it. Of course regulators never do it unprompted.
"Consent is presumed not to be freely given if it does not allow separate consent to be given to different personal data processing operations despite it being appropriate in the individual case, or if the performance of a contract, including the provision of a service, is dependent on the consent despite such consent not being necessary for such performance."
The problem is that it takes years and users don't wait for years. There should be a way to harm these companies more on the EU level.
a. completely optional/disable-able and
b. Self hosted llm friendly, with specific instructions given on how to use it with things like Ollama
If you agree that the world needs better examples today, then Samsung has definitely showed one.
Some companies are so dead set on doing this shit, that they don't even have mechanism in place that would enable them to act upon you opting out. It is a sign of dysfunctional companies. You can also observe this, when you send companies a GDPR request for deletion and they do eeeeverything to not have to go into their shitty system and delete the data, because that would require them to do manual work.
Tracking-free link: https://www.neowin.net/news/samsung-will-delete-your-health-...
Don't threaten me with a good time.
I'm so tired of tech companies shoving AI into everything, everywhere.
https://duckduckgo.com/?q=dumber+than+a+second+coat+of+paint...
It never ceases to amaze me how many people defend the Darth Vader style of buying a product: "I am altering the deal; pray I don't alter it any further"
I assume it must be rooted in the just-world fallacy: "Clearly anyone affected must not have been careful enough or did something else wrong. Since I'm careful with my purchases, negative consequences couldn't happen to me."
Related reading: https://blog.codinghorror.com/they-have-to-be-monsters/